Friday, November 20, 2009

Blue Skies

Hi Blue Skies,

I'm not sure what to think (for myself) about staying off PLM. I'm working with issues of denial.
I need to jump in (I guess) and understand it more. (Maybe).

My Dr. Wang, is Doctor Gui-tai Wang on 141 East 55 #7F. 212-980-2844.
Shabby office, family run. Hal Prince's son goes to him.

I also do craniosacral therapy. I think that's pretty cool. I can give you his name too.

I've done acupuncture before and it does help me. I know this sounds weird but I think the Chinese are the best acupuncturists.

I'm off to the Catskills for a weekend of meditation!

I was reading GQ. Clint Eastwood said he's been meditating twice a day for 40 years. So does David Lynch. He even wrote a book about his life of meditation. I smell a huge film career for me (after this weekend).

C_R

HAIR TEST FOR TOXINS

Thursday, November 19, 2009

Tarantula Arms

I bike to my dentist on Broadway and 69th to discuss replacing my fillings
The last time I was there, I biked on my old Schwin.
Today I get there on a battery operated bike with a cane strapped to the back.

My lady dentist is cold and kind, pretty with a frozen smile - like a popular girl putting up with a loser.
I am vulnerable and ingratiating to gain favor.

I go through the preventative information I've gathered from the web.
She listens. I appreciate this. There is serious protocol to follow.

After I'm done with my spiel, she tells me she knows I'll be fine because she removed an amalgam from my mouth last June.
I did not know this or did not understand this. We took no preventative measures (that I can remember).
I am down the rabbit hole.

___________________________________


I bike to APPLE on 14th and Ninth. My iphone is broken.
The store is awash in young, materialistic, prettiness.
I can't breath.

_____________________________________

When I get home, Jackie comes over and we complete my hair test.
The hair test is a mail order exam that checks for toxins.
It requires you to cut a lot of your hair, as close to the scalp as possible, from all over the scalp.

I sit in my one rickety antique chair (my back aches because my lower and mid back muscles are wasting).
I take the shade off the table lamp so that Jackie can see better.
Jackie gets the scissors from the secretary and starts cutting, chunks at a time, leaving holes in the back of my head.

The first few cuts we do wrong. We haven't read the directions correctly. We put the hair in the trash and start over.

There is a little aparatus that comes with the kit, a sort of makeshift scale, that shows you when you;ve cut enough.
We have to keep cutting and cutting to fulfill the test's requirements.

I finger the hair on the table.

My hair is black and grey and very soft. I don't recognize it. I picture a whole different look and texture (for me). This hair isn't bad, just foreign.

Jackie says, "I'm ruining your excellent haircut, it's a very good haircut and I don't want to ruin it."

This is generous. My hair looks crazy, dry and shaggy. I haven't seen Max, my russian barber, in months.

"Don't worry about it, just cut!"

My vanity is gone and good riddance.
My legs are the legs of the undernourished. My face is a constant rigid expression that says "get out of my way, something is happening to me., I'm not sure what, but get out my way."

After we're done, I fill out the paperwork as Jackie looks through the Medicare Book. She wants to see if Medicare will pay for this hair test. I assure her that they won't, but Jackie's not convinced.

"They just might Charlie, and why pay for it if they will. And you know what? While I'm at it, I'm going to look into getting a free pair of glasses for the BOTH of us. Medicare DOES provide that. You can't choose your frames though, you have to get standard issue frames."

Sometimes I picture Jackie and I as a re-imagined Jimmy Stewart and Thelma Ritter in "Rear Window". Jackie wouldn't like that comparison, however. She doesn't like to think that she is old or that she has a thick New York accent, which she does.

Before Jackie goes, she lends me a movie that has Elia Kazan in it.

I see Elia Kazan's biography in the bookshelf and say,
"Oh, Jackie, you should read his biography, it's great. There's a lot about Marlon Brando in it."

(Jackie loves Marlon Brando. According to Jackie, Brando has "salt and pepper" = (SEX APPEAL) and so does John Garfield, but Gregory Peck or say Tom Cruise? Well, they don't have "salt and pepper". She's quite serious about her male movie stars and who has "salt and pepper". John Garfield has the most "salt and pepper". When I asked Jackie about John Garfield, she talked
a full two hours, I nearly had to push her out of my apartment.

I retrieve the Elia Kazan book and Jackie puts the shade back on the lamp where we were cutting my hair.

"Enough with the bare bulb! I can't take this bright light anymore, it's too much!"

'You're reminding me of Blanche Dubois, Jackie, another Kazan movie."

And without missing a beat, Jackie says to an imagined listener,

"Straight? What's 'straight'? A line can be straight, or a street. But the heart of a human being? "

(and)

"Tarantula was the name of it!!! I stayed at a hotel called the Tarantula Arms!!"

Wednesday, November 18, 2009

UNDRESSED

I am told to remain upright for as long as possible, reduce and eliminate toxins, change my diet, work out, don't lose weight -better yet, GAIN weight... and most important -  remain positive.

(I'm dancing as fast as I can).

This morning is lost to cooking, coffee and the paper.  The kitchen. I don't want to clean it, I want to tear it down and build a new one. The shallow sink is always full - the white tiled floor, filthy - the plastic counters, wet and crowded.

After brunch, after my first gulp of vitamins,  after JUICING! -

I massage my body with vata oil, an Ayurvedic method to detoxify the body. The oil has " a synergistic blend of 9 herbs, including ashwaganda, bala, passion flower and jasmine. Traditionally prepared in a base of organic sesame and olive oils, it warms and lubricates the delicate vata system, restoring calm and providing strength".

 I read and meditate.

My daily schedule to save myself is huge.

I want to sit on the couch and drink coffee.
I want to eat crackers and go to park.

BUT!
I have an appointment at 1 pm to see Gabriel, my cranialsacral therapist. I will be late.

I shower and dress. Dressing involves the frustration you might feel threading a needle with shaky hands (and time is of the essence) - I curse!

I step over kitty litter, old newspapers, dirty clothes
I surrender to DOG PATCH. And with Aroo daintily stepping over a lost sock, I realize I am brewing my own GREY GARDENS.


Before I go,

I strap on my leg brace and check for;

Keys, phone, wallet, glasses, sunglasses, cane, nuts and an apple, books, notebook, bike keys, bike battery, camera memory chip, nikon camera, mini video camera, gaffers tape. (I will tape the video camera to the handle bars of my bike today).

I swallow my second round of vitamins - the ones that need to be taken on an empty stomach.

I put on my dated periwinkle-blue Patagonia coat, and bike to the mess (where east meets west) in the lower thirties.

When I get to that thick traffic, the unique grainy cloud of New York that can't be replicated in movies made in Toronto or LA -when I get to 115 west 30th - a round hispanic teenager (part thug, part shy little guy) lifts my bike onto the sidewalk (the six inches in too much for me) and escorts it to a post twenty feet away. I follow with cane.

This act of kindness is a surprise for him (not for me, I'm getting used to being waited on).
He hadn't expected to be acting with mature charity.  His look says both shame and pride.
I am immune to his transformation. I am tired and resigned and foggy voiced.
I thank him like a worried old man.

Locking up my bike, I run into the same college friend I ran into last week! He's on his cell phone. He grins and pantomimes - "I'm on the phone,  I can't talk" also implied is - "this  is embarrassing! We ran into each other last week! and we didn't have much to say then, and here we are again!"

On the 12th floor of 115 west 30th (the floor filled with quiet creative start-ups) I peer into an open lofty room with one orange wall and racks of kid's clothes and toys. The business is called (something like ) "Organic Kid Scape".

I pass other inspired companies until I reach Backbone and Wingspan, where my craniosacral therapist works.

Gabriel is quiet when I greet him. Our last session was so successful, perhaps he doesn't want to mess it up with small talk.
He does comment that he likes my cane.

This time, we are silent. There is no speaking in tongues. I silently release my pain to him and it's almost sexual. I am good at letting down my guard when I need to (I think).

During the therapy, my mind dances. Some ideas I plan, and some I don't.

My body- I imagine it to be an aquarium - and went Gabriel speaks to my body (to my soul) and asks it communicate through my voice, I  picture the whole underwater world poised and listening, interested.

My body pleads, please don't do any more harm. Please don't say negative things or do negative things to this aquatic world. We ask you to be gentle.

I imagine the my body filled with cells, happy and angry. The universe (I posture) is mostly filled with smiling cells but my body is filled with a majority of angry, unhappy cells. My unhappy cells need to be turned over - need to change, release, allow the universal power, the strength of the divine eternal - star wars power - to aline happy... in my aquarium.

I don't have to hurt myself, stress out... to be me.
I am a part of divine perfection.  Are you listening Me? Leave me alone.

Afterwards, Gabriel tells me that he felt me open up in a way that he hadn't before. "Good!" he says.
He says he senses a deeper peace, a deeper understanding from me.
I feel my ego.  I am feeling sage-like and guru-ish.., me on my very special journey.

I tell Gabriel about the woman on the elevator who said "Its a good life unless you weaken".
Gabriel's interpretation is more positive than mine.
He takes it to mean weaken spiritually, not physically.

I bike to Whole Foods and the vitamin store to shop for healthy fats and vitamins.

There is a beggar on the corner. She wears a kerchief on her head. She asks everyone that passes her for change but when I pass her she just smiles. And she smiles at me with naked recognition. I feel undressed. We are equals.

I find a dollar and hand it to her.

Tuesday, November 17, 2009

Sunday, November 15, 2009

SATURDAY


Saturday at noon, I bike to Patient's Medical (on 42nd and Second) for glutathione, lipoic acid IVs and my B12 shot and I feel better. I am more my self. I feel centered and energized.

(I can't afford these treatments)

huh.

The glutathione induces a happy, angry, edge, like a cup of black coffee during a mild argument.
The glutathione  revs me up.

My apartment will be an inspiring creative haven! A streamlined home/factory! - to write, photograph, design, and edit!

I will derail this disease!

This disease has nothing to do with me or my plans!!

________________________

Write a short story!
Write a play!
Write a one act  or any essay!
Write an actor bio (for the future) describing how I beat this terrible disease!
____________________

Once home, I swim.

And then I turn on NPR; Garrison Keillor, short-stories read from The Symphony Space.
The readers are Mary Stuart Masterson (I kinda know), Cambell Scott, and Marian Seldes.
Marion Seldes - always compelling - reads "Number 10"  by Edna O'Brien, a story that embraces magical realism with wry humor.  An upper class wife willingly sleepwalks and discovers (through her dreams) the true nature of her marriage.

I like radio. It feels pure and communal. It doesn't suck up the room like T.V or the internet.


MALBEC


Miss Malbec!

I'm great.
Hope you're swell.

I'm (slow as syrup) but have dozens of annoying things to do (daily) which I (take on) or ignore as I choose. I've been researching the consequences of stress and diet on the body.
So whenever you want an ear-full about taking care of yourself (i.e no smoking, getting enough rest)
I've got a mouth full to say about it.
CHARLIE ;-)

Prayer at church.
Maybe we might talk about it.
Is the naming of names in prayer at the Presbyterian Church gloomy and foreboding? (Or) Does the naming aloud (of people in need) feel hopeful and life affirming?
I am weary of following a path of doom.

I believe in prayer.

I've always imagined the people named for special prayer during the Episcopal service to be in a final fight for life. Mary Baker Eddy encourages silent (humble, meek) prayer.
_________________________________

Mr. Grape-er,

Great to hear from you! Can you believe this weather?? Seems like we should have a garden party before this summery air goes away...

I find the prayer at my church life-affirming and positive. I am totally into going to church these days. I thought it was just my minister and her fabulous sermons, but today I went and she was away and I still got this amazing lift. I really love my church and it makes me feel good. I think it actually changes my brain chemistry. I just wondered if you want your name known. I pray for you anyway, just as I do for all my friends and family.

Speaking of which, my brother, Pete, (the one in West Virginia who has lived his whole adult life as a holistic hippie: no booze, no cigs, fresh mountain air, etc) has something wrong with his kidney and we are all very worried. Him most of all. My sister and nephew and I are going down there for Thanksgiving.

Yes, I do want you to lecture me about cleaning up my lifestyle. Especially if it is over a bottle of Malbec.

I will be your foot soldier in the fight against the prophets of doom.

See you soon I hope,

E. Malbec

Saturday, November 14, 2009

Patients Medical


Patients Medical
Originally uploaded by Charlie Roberts

Friday, November 13, 2009

JOHN or "CLIPPED WINGS"




Hey John, I don't want to post anything that would be irrelevant.
So I'm sending this to you because you're so read up on everything.
I am slowly making my way there.


http://www.npr.org/templates/story/story.php?storyId=120316010


I realize not a cure, but away to rebuild after the cure?
I am reading Eric is Winning. Gets me pretty nervous.
I'm looking into having fillings removed. I have four.
My dentist said she could do it one sitting.

I am trying to eat perfectly but am losing weight.
I think its hard to keep weight on with out cheese or bread.


Charlie


_____________________________






Hi Charlie,


Actually, this study is not irrelevant for people who are rebuilding after a successful stem cell procedure.


By fillings, I assume that you mean mercury amalgam. Yes, get them out. I found a lot of information concerning mercury fillings on YouTube last night. Nasty stuff.


Early in ALS, there is almost nothing you can do to prevent some weight loss. The objective is to keep it slow. You should stabilize at some point, and this will be your ALS weight. Over three years, I've dropped from 170 to 127!


Regards,


John

__________________________

Sister writes.

I agree that you should have your fillings removed, just concerned that it be done in a way that minimizes your exposure to mercury, so make sure that your dentist knows that this is necessary. I say this because my dentist also said no problem to removing a mercury filling, took no precautions, I swallowed a lot of junk and breathed in vapors, very sick the next day.


We are going to the Cape tomorrow, will be back on Monday.

Will put the hair analysis test in the mail to you. It apparently requires a significant amount of hair. If you have questions on how to do the test call Barry. He's not in on Sunday or Monday as you already know.

Are you going to use any of Cyndy's ideas?


xo *;-) Sister





Thursday, November 12, 2009



Is A Cure For ALS Around the Corner?


Is A Cure For ALS Around the Corner?

November 11, 2009 - 1:25 PM | by: Reena Ninan
When New York Yankee Hall of Famer Lou Gehrig died from ALS (Amyotrophic Lateral Sclerosis also known as Lou Gehrig's disease) in 1941 there was no cure. Sixty-eight years later there is still no cure. The disease affects nerve cells in the brain and spinal cord, eventually paralyzing the body.
BrainStorm Cell Therapeutics Inc, a public U.S.-Israeli company that develops adult stem cell therapeutic products, may be on the verge of a significant breakthrough in ALS treatment. Fox's Middle East Correspondent Reena Ninan sat down with the company's chief scientist Prof. Daniel Offen, here are excerpts from the interview:
NINAN: What's the ALS breakthrough you're working on?
OFFEN: In our previous studies we have shown that our newly developed bone marrow derived stem cells can protect neurons in tissue cultures and in animal models. Recently, we found, in several experiments, that these unique cell populations can rescue motor neurons which are the cells that degenerate in ALS, as well.
NINAN: What makes you optimistic this will work with ALS patients?
OFFEN: Instead of using embryonic stem cells, which have ethical and safety issues, we take adult stem cells, differentiate them and transplant them into the patient. Our focus is to change the environment of the cells at the site of damage in the body. We also use cells taken from the actual patient with the disease, which greatly reduces the chance of rejection. We know of no other company that is doing this. We are extremely optimistic about our approach and its chances of success in helping ALS patients.
NINAN: If this research proves affective how will this change how we treat ALS patients?
OFFEN: We believe that within a year, if not sooner, our cell-based approach will be proven to be safe. Then, after controlled studies and FDA approval, ALS patients, both in early and late stages of the disease, will be able to enjoy alleviation of the symptoms and have the benefit of a better quality of life.
NINAN: Why has finding a cure for ALS been so difficult?
OFFEN: Because the exact cause of the disease is not known. Today there is no effective drug that is able to slow down the progression of the disease. Our new approach bypasses our lack of understanding and utilizes the patient's own cells to secrete high doses of natural protective factors to the cells affected by the disease.
NINAN: You've also had success with neurodegenerative diseases like Parkinson's disease and Huntington disease. What's new there?
OFFEN: In studies we have shown that neurodegenerative diseases share the same damage pattern. Therefore, a specific therapeutic agent can potentially ameliorate the symptoms of several distinct neurodegenerative diseases. We used our unique stem cells in animal models of Parkinson's disease and Multiple Sclerosis and found that indeed, the transplanted cells rescue the degenerated neurons. Brainstorm plans to continue to study how our stem cell technology and methodology can be further utilized in the treatment of other neurodegenerative diseases.

STARVING IN SOHO

I bike to SOHO.

I carry my (sky blue) fleece coat (with a periwinkle zipper) into the Patagonia store on Wooster Street. The zipper is broken.  The pretty counter girl and the soft, malleable manager, assist me carefully - me with my cane (made from an apple-tree branch) - me with my modest low energy.
(My gentle composure feels like an act - I'm not soft spoken and patient, I'm a jaded -I want it now! New York type. (I won't go into a store with a line. I just walk to the next one.  The confusion of a store like Macy's makes me mad).

"Would you like to sit down and rest your legs, sir?"

"Thank you, yes,"  I whisper. I'm so dear and fragile.

The kind store manager retreats to the back room to fix the zipper.
I sit on a bench by the display window. I am an old man, over-taxed from just getting to the store.
My normal mode would be to case the joint -paw my way through all the merchandise, try on six or seven things and buy nothing. Today, I sit on the bench and stare into space. I check my iphone.

There is beautiful outdoorsy youth here. Kids in their twenties who get high from the right parka for their weekend tenting in upstate New York. This is something I aspired to. This was next on my list.
I don't dare think past my present situation to what is denied me. Luckily, my mind stops to what is available to me right now. Perhaps this containment is physiologically programmed in each one of us. The sense of loss would decimate.

When the store manager returns, he tells me (more than once) to come back anytime and exchange it for a new coat.

"But the coat you have now is actually made better than the newer ones... you might want to hang onto it."

He tells me they'll donate my blue (azure?) coat to charity or recycle the polyester fleece.  They're not in business to make money, they're here to keep people warm.

Back to my bike, I'm feeling vulnerable. The getting (on and off) of my bike is more precarious (for now).  I will get better. I need to relax, focus, slow down.  Like the tightrope walker in "MAN ON WIRE" (I saw it last night on my laptop) straddling my bike requires great slow precision, which I enjoy.

I'm starving in SOHO and I consider (giving in) and eating at Ben's Pizza. But I've committed to no wheat or dairy.

Voices (in my head) offer conflicting directives.

"Eat whatever you can, whenever you can!"

"You must detoxify, eat only the purest foods and liquids!"

Yet another voice suggests riding around the block. Investigate.
I follow this suggestion and lock my bike up near a quiet, drab restaurant on the corner of Sixth and Prince. I can't make out the sign, but the plain facade speaks healthy honest food.

I cross the street with some trouble and discover that the
it's organic macrobiotic.

Souern (www.souen.net)

Inside, the bland atmosphere matches the wholesome cuisine.
(I imagine Gwyneth Paltrow slumming here).

I have a platter of steamed vegetables (nicely seasoned) with brown rice, and while I eat, I read "Eric is Winning". This book is inspirational.  It gives me ideas. I'm grateful he wrote it.

(I discover the whey isolate protein I've been ingesting daily, is a source of MSG.
MSG releases glutamate to the brain and short circuits it.
I've been eating whey isolate protein to retain body mass, and because (I read) it's a cheap way to produce more glutathione (the main antioxidant) of the body). Argh!

At Church. An excellent meeting. All of the speakers are so articulate!!

(There is no disease. There is only belief in disease).


Wednesday, November 11, 2009

cane


cane
Originally uploaded by Charlie Roberts