New York Cab Ride
Originally uploaded by Charlie Roberts
the chronicles of "a neurological disease" - (so they say) HOW IT ENDED (it never was) & I REGAINED MY G-D GIVEN HEALTH! (Fin de siècle)

My father died tonight. He died at 7 (or 8?)
He is lying (alone) in a funeral home right now.
I just spoke to my mother. She sounds clear as a bell and loud and strangely normal.
She tells me,
"I was feeding him. and I asked him if he wanted an egg, and he said, one. So I made him some bacon and some eggs with some butter and salt. I brought it over to him but he wouldn't eat it.
He was sitting in the new $1200 chair I bought him and I thought, I'll just let him sit there - we'll build him up tomorrow.
And then he was dead. I can't figure it out. I can't figure out how it happened. I’ll have to think about it. I'll figure it out tomorrow.
But it's late now. It's cold. It's sixty degrees out here on the deck and I'm cold. So I'll call you tomorrow, hunnie...
...Okay?"
My mother (like my aunt) is impervious to emotion. No matter how dire the situation, it is spoken of with flat and unemotional practicality. Bad news is delivered like you're getting instructions and scolded at the same time.
My aunt left this stony message - "Charlie?! Your Dad died. Call your mother but use her cell phone, the home phone isn't working."
(click)
But my sister reached me first.
I was sitting on a rolling stool in my kitchen. (I cook my food and eat it next to the stove because it's too much effort to carry the plate to a table or counter).
I was eating my fish dinner and my cell phone rang and I knew - could feel - that something was up.
As soon as my sister said, "Charlie?" and then pause - I knew my father was dead.
And I dreaded hearing it because I didn't want to experience how I felt about it. I didn't want to manufacture an emotion. I wasn’t sure how I was going to feel- how I felt. I didn't want to know.
My father’s been struggling since July. And because of this struggle, I haven't been able to make a connection to how he would get better. All this effort to keep him from falling backward... and for what? He seemed in pain, a lot of pain. He couldn't (shouldn't) drink alcohol anymore. He wasn't interested in food. Couldn't control his bowels. He seemed lost at times. He didn't always recognize neighbors. But still, even for all of that, my dad didn't want to die.
My father was still purchasing things (on the internet). (Later -we found a catalogue bookmarked to a very expensive sport coat for traveling (wrinkle free!) Where did my father imagine he was going?) His will to live- to continue to enjoy (with moody crankiness) the every day stuff -coffee -the newspaper, the game on TV - frankly it impressed me.
When I would see him (this past year) I would think... if it were me, I would just let go. My dad had no interest in letting go.
I’m on the phone by my Talapia.
My sister says to me over the cell phone
"Charlie? (pause) Dad died".
Died.
Died.
Strange and impressive to use that word. Like using the word mortgage when you buy your first home - or wife, right after you're married.
Died.
My dad died. The word died has an intimate smell and color to it (now).
My sister and I hang on the phone allowing the pauses their full due, daring the other to shape the conversation in a specific way.
And I think (as we talk) - I would be terrified for how my world had just instantly changed, but lately I've become an expert on (taking on) the unthinkable so I stare down the death abyss like a seasoned warrior.
My hand clutching my iPhone, I spin away from my talapia and ride the moments - hotdogging down the emotional slopes.
In my gut, I am worried for my dad. Death is a scary thing. Is he scared? Does he know what to do?
It's cold when your dead at first (I think). His body is cold and tiny on the white condominium carpet. Did my mother handle it right? I bet she didn't.
I allow myself to bawl, and it comes easily. I try to say to my sister,
"He was so.... tired."
But I am incomprehensible through my sobs and sloppy ALS voice.
"He was so what?" my sister asks.
"He was so... tired"
"He was so hungry?" she asks again.
"Tired!
TIRE - ERD.
He was so tired."
I'm really weeping (now) and later I realize that I was actually thinking about myself. I'm so tired. I'm so tired of trying to figure away to keep death at bay.
I'm so tired I'd just like to ... just give in.
I think about my Dad's cameras. The thousands of slides and photographs that will have to be sorted - his clothes.
I call my brother.
My brother asks If I'm alright and then wants to talk travel plans. My brother releases nothing emotionally.
I call my neighbor Jackie and ask her to come over.
I tell her my dad died.
Jackie, a repentant alcoholic and italian, is the opposite of my stoic mother and aunt.
When Jackie hears the news, she suffers.
We make my bed and she tells me how lucky and blessed he was to be home when he died. When I describe his life - she reminds me how fortunate he was.
"Not many people get a chance at a life like that, Charlie."
She gives me a hug and tells me she'll take care of the cat while I'm in Florida.
And lying in bed I realize, I'm not devastated, because my father left a while ago.
But I did have one good conversation with him last week on the phone. I described the three restaurants I was going to in New York for restaurant week. I described the outstanding service at Tocqueville, which I'd already been to, and my father listened brightly because he went out to lunch and dinner five days a week and sometimes nights too - in fancy restaurants all over Manhattan with an expense account from Time Magazine. His quiet knowledge of the New York restaurant scene created unacknowledged awe from me. He didn’t care he knew about it. I did.
When I described to him the joy of getting top notch service, my father listened and was far, far away from death.
He said,
"Now you see? We just can't get that here down in Naples, you just don't get that kind of service here!"
as if good service was the one thing keeping him from a night out.
My father wanted to live.
All stem cell procedures are not the same. Monterey uses autologus; taken from your hip and cultured over night before replacing through holes bored in your skull. although i heard, now they're putting the cells into the spine.
Some use placenta cells, some fetus cells, others are making breakthroughs in re-engineering skin cells into pluripotent (undifferentiated) cells which become nerve cells.
I emailed the american company but haven't heard back. there should be a report out from Monterey in March. am waiting. no one who has had the procedure is shouting from the rooftops yet.
cheers charlie!