I stumble around nervously preparing for my trip to Danbury Connecticut.
I'm seeing a nutritionalist. The nutritionalist has a protocol for ALS.
I filled out a ten page survey that asked identical questions (over and over again) like it was trying to catch me at a lie. On page one, "Do you experience gas after eating?" On page three, "After a meal, do you feel bloated and pass gas?" There were many questions about the color of one's urine and the shapes of one's feces.
I put this completed survey, along with all of my supplements, into a rolling suitcase.
I shower and shave and wear a new sky-blue v-neck sweater and clean khakis to look respectable if I happen to fall, pawing my way through Grand Central Station.
I close the door to my apartment with the cat stepping over an empty soy milk cartono on the hallway floor, the living-room lights still on, because I am too tired for a final round of tidying up.
I get a cab right away.
The cabbie, African American and super nice, sees me step off the curb holding onto a nearby awning pole (like I alone) am experiencing a small earthquake.
"Grand Central, please, and do you think it would be possible to turn around when we get there so that we're facing west, so that I don't have to cross the street? I'm having problems with my legs..."
"I know that." He cuts me off but not in a strident way, more in a concerned caring way.
He has marked me as a special passenger and he wants to do good.
"Let me think about this, let me give it some thought... the thing is U- turns are not good around at the station because the cops are everywhere. I can drop you off at Vanderbilt and 43rd?"
"Sure, that's fine, I'll use the escalator (t hinking he was talking about the entrance to the Pan Am Building... and now I realize in my own head, that it's not called the Pan Am building anymore, it's' the Metro Life Building... right?
"No, no, no, that won't work... there are stairs. dIt's the big grand entrance with all the stairs." my cabbie tells me.
"Yeah, that wouldn't be good. I'd never be able to get down all those stairs. You know what? Don't worry about it. I'll just ask for help crossing the street. I've never done it before, but I can do that.
I'll do that!"
When the cabbie stops at Grand Central, he gets out of the cab to open my door and flags down a nearby commuter to walk me across the street. This was unexpected.
I rest my hand on the man's shoulder.
We have a while for traffic to stop so we can cross the street.
There is that uncertain expectation of what will come next when the walks sign turns green.
Will we perform well together?
As we wait, I look down. I am present (and) I am not present.
I talk a lot. I jabber warmly politely.
"I asked the cabbie to drop me off in front of the station but he couldn't get close enough so... that's why he asked you to help. I have a neurological problem... my legs seem to be getting weaker and weaker. I've never asked anyone to help me walk across a street before, this is the first time. I guess I should get a cane, every day is different.. I never know what each day will bring..."
(and so on). This is a dream. If I talk enough, it's not really happening (or) I'm not really experiencing it.
My good samaritan is Australian and big and my age. He gently comments and smiles here and there.
He leads me to Grand Central. I land on a wall to lean on.
"Thank you so much, I really appreciate it, I think I can find my way along the walls, from here."
He smiles and looks me in the eye, "My pleasure. Cheers!"
And I am solo in the irritable rushing masses of Grand Central, a building that I have experienced my whole life. As a toddler, going to work with my Dad at the Tribune building. The years and years as a kid commuting for auditions. As a teenager escaping the suburbs. There has always been Grand Central and I've seen many versions of it. I like it. I feel home there and as I struggle through the familiar grandeur, I feel sad and ashamed of my current form, as if the station can see me, knows me, as well as I know it.
I have to make my way across the vast expanse of the main room (without the use of any walls).
Midway... I flail. Like a stop-motion animated character doing a pirouette, my arms jab out in the air at once, I spin on one foot, I claw at the air.
"DO YOU NEED HELP?!"
"yeah, I do. I need help."
Julie, a blonde, middle-aged, smart, woman, brittle with glasses, practical and reliable, she looks like she was an english lit major at Barnard. She wears pants and a fitted Burberry raincoat. She is concerned and also slightly alarmed to the point of almost being annoyed, like a teacher discovering a kid in the library when he should be outside for recess.
She leads me to my gate. I (again) blabber defensively.
"I have some problems and my legs seem to be getting weaker."
"You shouldn't be walking alone like this."
"Well, it's a new discovery every day. I'm never sure what the day will bring."
'You should get a cane."
"I think you're right. I should. I'm not making you late am I?"
"No, I'm fine. Have they named it?" (Juile jumps right in. She's nails my the seriousness of the issue right away and phrases her question in a way that plays to my defensiveness).
"Um.. yeah they have... but I don't really want to go with that or it."
Julie nods but this bothers her (I think).
I continue to blabber on to cover up the plodding walk to track 17.
"This is all new to me, I've lived in the area my whole life that I've mostly been a working actor."
Julie doesn't pick up on any of the cues I offer. This information I offer is irrelevant.
She drops me off at a rail by the train.
I thank her and she disappears quickly like I WAS making her late.
I grip the rail, and then steady myself using the side of the train, until I can get inside a car.
My hands are black. I don't care.
In Fairfield, the leaves are changing!
I see the nutritionalist. We talk antioxidants for two hours. I take notes.
I have dinner with my sister and Elliott.
Elliot lends me a cane his grandfather made from an apple branch.
I like it.
They drive me back to New York.